Family Support Network Children with Diabetes
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     July 6, 2008 Volume 14, Number 27 First Published in June 1995     
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Upcoming CWD Conferences and Events
  CWD Friends for Life 2008
Renaissance Orlando Resort at Sea World
Orlando, Florida
July 23-27, 2008
Focus Groups | Sign Up Form

Quilt for Life: DC 2008   CWD Quilt for Life: DC 2008
National Mall
Washington, DC
August 4-5, 2008

  CWD Focus on Technology
Marriott Bethesda North
Bethesda, Maryland
September 26-28, 2008
Scholarship Information

  CWD Focus on Best Practices
Marco Island Marriott Resort
Marco Island, Florida
January 1-4, 2009

Reports from recent CWD conferences & events:
-- Seattle, Marco Island, Minneapolis, Toronto, Orlando, La Jolla, New York, Quilt D.C. 2006
-- Upcoming CWD Conferences and Events


Headlines
OneTouch® PingTM Glucose Management System Cleared by FDA.

It turned everything upside down is a very clever, very powerful video. You have to watch it all the way through and withhold judgement until the very end.

Families from Florida are encouraged to take a few minutes to complete an online survey by the American Diabetes Association about diabetes care in school.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring?

Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

In Type 1 diabetic patients with good glycaemic control, blood glucose variability is lower during continuous subcutaneous insulin infusion than during multiple daily injections with insulin glargine.

Continuous subcutaneous insulin infusion therapy: effects on quality of life. Free full text available in PDF format.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.

Strong association between time watching television and blood glucose control in children and adolescents with type-1 diabetes mellitus.

Every family is encouraged to download a copy of Helping the Student with Diabetes Succeed: A Guide for School Personnel from the web site of the National Diabetes Education Program, a joint program of the National Institutes of Health and the Centers for Disease Control and Prevention. If the 88-page PDF file is too large for you to download, you can request a free copy of the document by printing the order form and faxing or mailing it to the NDEP.

The ADA's Legal Rights of Students with Diabetes is an authoritative and comprehensive tool for families seeking to ensure that their children with diabetes are afforded all of their legal rights while they are at school. This document is indispensable for all families. You can download the complete PDF from the ADA web site or from the Children with Diabetes web site.

The Family Support Network now includes over 3,760 families from 50 states and 76 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 658 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
Join Laura Billetdeaux on Tuesday, July 8th for our final chat about the upcoming Friend for Life: Orlando 2008 annual conference. The chat begins at 9pm Eastern in the Friends for Life chat room.

Grandparents coming to Friends for Life are invited to another Grandparents Chat on Thursday, July 10th at 9pm Eastern in the Grandparents chat room.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to [email protected]

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Featured Book of the Week

[RECOMMENDED!] When You're a Parent with Diabetes by Kathryn Gregorio Palmer. Published by the Healthy Living Books / Hatherleigh Press, 2006. Paperback, 123 pages. $14.95 ISBN 1-57826-232-1.

Many books offer guidance and support to parents who have kids with diabetes, but until now there has been nothing specifically for parents who have diabetes. When You're a Parent with Diabetes will help adults with diabetes with the challenges of being parents, and the unique challenges they face having diabetes (e.g., how do you hide your juice boxes from your kids?).

As the parent of a child with diabetes, I can't fully appreciate what it means to have diabetes, but I am thankful and grateful for Palmer's insightful book. One day, our children with diabetes will become parents with diabetes, and When You're a Parent with Diabetes can help show them the way. Highly recommended for adults with diabetes.

-- Jeff Hitchcock

 
Order When You're a Parent with Diabetes from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Is it common for people with type 1 to need less insulin in the early morning? Why is it that I need LESS insulin for corrections when I'm severely high? Could I still make insulin 24 years after diagnosis? Why do insulin needs increase during menstruation? (8 Jul 2008)
-- Answers to over 18,350 questions
-- What's your question?


From the Diabetes Dictionary
Proinsulin
The initial protein made by the beta cells of the pancreas that later is broken into several pieces. Proinsulin consists of three parts: C-Peptide and two long strands of amino acids (called the alpha and beta chains) that later become linked together to form the insulin molecule. From every molecule of proinsulin, one molecule of insulin plus one molecule of C-Peptide are produced. (It may be noted that commercial production of exogenous insulin purifies the original insulin, and removes any residual proinsulin and C-Peptide that might have been initially present.)

-- More definitions


Surveys and Studies
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

Adult males with type 1 diabetes are needed for a study about Benfotiamine and Complications in New York.

The University of Florida is running a study about Cord Blood and Diabetes.

A study on Autoantigen Vaccination In Human Type 1 Newly Diagnosed Diabetes Mellitus is seeking adults 18-35 who have been diagnosed with type 1 diabetes mellitus less than three months.

-- Other Studies


Diabetes Humor
I was looking for the bank statement the other day. I asked my wife, "Have you seen the HBA1c statement?" She laughed and said, "Do you mean the HSBC bank statement?"
-- More Humorous Tidbits

You know you're a parent of a child with diabetes when ...
... you see the high gas prices at a station and what you really see are high blood sugar numbers.
--More Parent Humor


Living With Diabetes

-- More children with diabetes
 

My name is Katlynn. I'm 15 years old and found out I had type 1 diabetes on November 11, 2006. I remember the whole day. I thought I had a bladder infection so my mom made me go see the doctor. I was a normal kid for most of the day, before going to the doctor we decided to go get Starbucks coffee which is loaded in sugars. Anyway after getting my coffee me and my mom headed to the doctor. We took a urine test and the doctors noticed that sugar was emptying out into my urine. The nurse came in and said I needed to check my sugar. It took me about 15 minutes to get it checked, because I had always hated those dumb finger pricker's. The nurse had a blank look on her face, so I thought it was normal. I asked her what the reading was. She had told me it was 404 and then left.
-- Visit Katlynn's page

 

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Current Poll

  How much of a financial burden does paying for all of your diabetes supplies place on your family?  
   

Extremely high burden - we can't afford some needed diabetes supplies

 
   

Very high burden - we struggle to make ends meet because of diabetes

 
   

High burden - we do without many things because of diabetes

 
   

Modest burden - we do without some things because of diabetes

 
   

Minor burden - we chose less expensive things because of diabetes

 
   

No burden at all

 


 

Poll Results

 

How much of a financial burden does paying for all of your diabetes supplies place on your family?

 
     

Extremely high burden - we can't afford some needed diabetes supplies

 
 

5%

 

 
     

Very high burden - we struggle to make ends meet because of diabetes

 
 

9%

 

 
     

High burden - we do without many things because of diabetes

 
 

9%

 

 
     

Modest burden - we do without some things because of diabetes

 
 

23%

 

 
     

Minor burden - we chose less expensive things because of diabetes

 
 

20%

 

 
     

No burden at all

 
 

30%

 

 
-- View Results & More Polls

Diabetes Marketplace
Featured Product


Diabetes Marketplace

Featured Recipe
Strawberry Smoothy
More Recipes

Top E-mailed Pages
1. OneTouch Ping Glucose Management System Cleared by FDA
2. Nick Jonas Reveals He Has Diabetes
3. Continuous Glucose Sensors
4. I-Port
5. 2008 Friends for Life Conference and Expo
6. Quilt for Life - DC 2008
7. Care Suggestions
8. Type 2 Diabetes in Children
9. Insulin Pump Therapy
10. What is Type 1 Diabetes?
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Top Rated Pages
1.   Nick Jonas Reveals He Has Diabetes
2.   OneTouch Ping Glucose Management System Cleared by FDA
3.   Diabetes Warning Signs
4.   Camp Granada
5.   Carbohydrate Counting
6.   Sample 504 and IEP Plans
7.   Blood Sugar Converter
8.   Montana ADA Youth Retreat
9.   Carrying Cases
10.   Chiara
Top 20 Rated Pages

Find US Schools By
Blood Testing Rules

Find schools where blood testing is allowed


Restrict to schools with the following ZIP Code


Restrict to schools in the following state



Recommended Books


Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver


Become an expert in
your own diabetes
Buy at Amazon.com



Living with diabetes
and as a parent
Buy at Amazon.com


The Adventure of A Lifetime
Buy at The Diabetes Mall



NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Sun Jul 06 18:14:20 2008
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