CWD Cure and Care Survey

This survey is now closed. Thanks to everyone who participated.

The purpose of this survey is to learn how parents and families of children with diabetes view the progress being made in diabetes treatment today, what about life with diabetes they find most difficult to cope with, and how they would like to see diabetes research funding allocated.

1. How many children do you have with diabetes?

2. In what country do you live?

3. The ages of my child/children with diabetes are: (indicate all that apply)

4. In what year was your child diagnosed with diabetes?

5. My child's last A1c result was:

6. Life with diabetes is very challenging. What do you find most challenging about life with diabetes? Please rate each of the following aspects of life with diabetes on a scale of 1 to 3 (1 = most challenging, 2 = somewhat challenging, 3 = not too challenging, 4 = not challenging)
1 2 3 4
Maintaining optimal blood glucose levels
Insulin dosing
Carbohydrate counting/meal planning
Hyperglycemia (high blood sugars)
Hypoglycemia (low blood sugars)
Managing complications
Exercise and sports
My child feels "different" from his/her peers
Finding a good doctor and/or diabetes educator
Dealing with my child's teacher or school with regard to his/her diabetes

7. Overall, I find it hard to manage life with a child/children with diabetes.

8. At the time your child was diagnosed, how far away did you think a cure would be?

9. How many years do you think we are from a cure today?

10. How do you think type 1 diabetes will be cured?

11. If you don't think that diabetes will be cured, what do you think will be achieved?

12. If you had a significant amount of money to donate to diabetes research, how want the money to be spent? (Check all that apply)

13. On a percentage basis, how do you think all the money in the world that is available for diabetes should be spent across the following areas? (Please make sure the total equals 100%)

14. Overall, where do you think the most progress has been made to date regarding diabetes?

15. In what area(s) do you feel the most progress will be made in diabetes?

16. Overall, where do you think the least progress has been made to date regarding diabetes?

17. Overall, where do you think the least progress will be made regarding diabetes?

18. Do you feel it's more important to improve day-to-day life with diabetes or to find a cure?

19. On a scale of 1 to 5 (1 = very optimistic, 5 = not optimistic), how optimistic are you about the likelihood of a cure for type 1 diabetes arising from each of these areas of research? (Please choose one number following each item in the list below)
very optimistic not optimistic
1 2 3 4 5
Islet cell transplantation
Beta cell regeneration
Gene therapy
Artificial pancreas
Preventing diabetes in future generations through a vaccine

20. If you could send a message to researchers in any area of diabetes treatment or prevention, what would you say?

21. If you'd like a summary of the results of this survey, please provide your name and email address.

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Last Updated: Sun Mar 20 13:14:09 2005
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