Type 1 Diagnosis Survey

The survey is closed (July 30, 2000)

July 18, 2000

Dear Parents and Kids,

I am the parent of a Type 1 diabetic who was misdiagnosed for several months with other diseases (i.e., sinus infections, allergic reactions, etc.) before she was correctly diagnosed with insulin-dependent diabetes. I am also a college student. As part of my graduation requirements, I am required to complete a research project. My project is regarding Type 1 (insulin-dependent) diabetes and any possible misdiagnosis and myths surrounding the disease.

Type 1 diabetic adults and/or parents of children with Type 1 diabetes are invited to answer this survey. If not stated, all questions relate to Type 1 insulin-dependent diabetes.

Thank you in advance. Your help is greatly appreciated.

Mary Dorsch

  1. Who is answering this survey?
    Adult with Type 1 diabetes   Parent of child under 18 years of age with Type 1 diabetes
      Age of adult
       18-27 years
       28-37 years
       38-47 years
       47+ years
        Age of child
       Birth-4 years
       5-9 years
       10-14 years
       15-18 years

  2. Were you (or your child) diagnosed with another disease before you were correctly diagnosed with Type 1 diabetes?
    Yes     No

    If yes, check diseases that apply:
    sinus infection
    yeast infection
    allergic reaction

  3. Did you recognize the warning signs of Type 1 diabetes before you (or your child) were diagnosed?
    Yes     No

    If yes, check the ones that apply:
    increased thirst
    frequent urination
    weight loss despite increased appetite
    blurred vision

  4. Prior to the specific diagnosis of Type 1 diabetes, did someone in your immediate family already have Type 1 diabetes?
    Yes     No

  5. Did you (or your child) have any beliefs or myths surrounding Type 1 diabetes that you found to be untrue once you were diagnosed with the disease?
    Yes     No

    If yes, check myths that apply:
    you can never have sugar again
    only fat people can get diabetes
    you can't get diabetes if someone in your family doesn't have it
    not a problem, my lifestyle won't change

  6. Do you feel there is enough information and help for Type 1 diabetes available to you?
    Yes     No

    If yes, check which apply:
    Specialist (endocrinologist, diabetologist)
    diabetes educator
    regular medical provider

  7. Where do you live?

  8. Additional comments (optional)

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Last Updated: Thu Aug 29 20:59:46 2002
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